Onboarding Guide for Patient-Oriented Research Teams were co-developed with Patient Partners. The working group, which included individuals new to POR, developed infographics to support both researchers and Patient Partners to help position new patient-oriented research teams for success. These guides have been shared widely throughout national patient-oriented research circles!
The Patient & Researcher Connection Site matches patient-oriented research projects with Patient Partners and shares opportunities for patients to take part in the research in a variety of ways, from participating in surveys to being equal members of the research team. Since its inception, the Patient & Researcher Connection Site has seen 70+ opportunities posted, 5,768 home page visits and many successful connections made!
Achievements in Patient Engagement over the past year
Patient engagement funding and coaching opportunities were identified and began to be developed for the Learning Health System (LHS) program. They included the Stakeholder & Patient Engagement Application Development Award (SPEADA) and the Building Exceptional Teams (BET) Workshop.
Patient engagement awards for trainees and patient-oriented researchers (SCPOR Trainee Engagement with Patients (STEP) Awards and Patient Engagement Application Development Award (PEADA)) were updated based on feedback from past recipients.
SCPOR’s Patient Engagement platform, including staff and Patient Partners, successfully transitioned from the Saskatchewan Health Quality Council (HQC) to the Saskatchewan Health Authority (SHA). The transition included networking with new SHA colleagues, connecting with SHA Patient Family Leadership Council members and reviewing existing SHA processes based on SCPOR best practices. This transition is part of the long-term sustainability plan for POR in Saskatchewan.
SCPOR’s Patient Partners played a significant role in drafting the Terms of Reference for the phase two grant’s Patient Partner Advisory Council (PPAC). One of the highlights was the inclusion of a patient mentorship program.
New definitions better reflect SCPOR’s
Values
In early 2022, SCPOR’s Patient Partner Advisory Council recommended updating SCPOR’s value definitions. Together with SCPOR staff, Patient Partners formed a working group to review and revamp the definitions to ensure they accurately reflected SCPOR’s understanding of patient-oriented research and were inclusive of elements required to support the development of a Learning Health System.
Patient-Oriented • Equitable • Responsive • Innovative • Capacity Building • Collaborative •
Continuous Improvement