Dale has experienced the healthcare system as both a patient and a caregiver. Some of his experiences were very positive while others were not. He became involved in the Five Hills Health Region, Patient & Family Advisory Council. Dale was a member of a SCPOR team that developed SCPOR’s Speed Networking events where patients and researchers to connect to discuss their ideas for research questions.
Ambrosia is passionate about changing the focus of the health system and health research from re-active to pro-active. She suffers from a genetic condition (Ehlers-Danlos Syndrome) and multiple co-morbidities. Because her conditions are invisible she often has experienced challenges with the health care system. Ambrosia encourages researchers to focus on preventative medicine and improving the quality of life for patients suffering from chronic and complex conditions.
Lynn is passionate about patient-oriented research as she wants to make health care more culturally appropriate. She has been living with HIV/AIDS for the last twenty years. She has watched First Nations people dying and suffering and would like to help change the healthcare system so all people have access to the best care.
Janet has supported her family member to access the healthcare system and has been an advocate for them. Her goal in being a family advisor is to help create change in the system based on the priorities of patients and families.
Diana was diagnosed with breast cancer in 1993. Since then she has become a cancer advocate and served on several national boards and research peer review panels. She believes change can only have when backed by credible, patient-oriented research.
Janet believes in the mandate of patient-oriented research. She has a rare form of an inflammatory arthritis. She is a patient advisor with the SPOR Chronic Pain Network and volunteers with the Canadian Arthritis Patient Alliance and the Cochrane Collaboration.
Heather lives with Multiple Sclerosis and Arthritis. She journeyed with her parents through different dementia conditions and has been a voice in Dementia research for over a decade. She is a patient and family advisor because she wants to use her voice to help improve health and health care through research.
Candace has been a key champion for patient-oriented research for many years. She advocates for improvements to design of the health system. Candace lives with two potentially life-ending conditions; lung cancer and idiopathic pancreatitis, both of which are highly stigmatized and under-researched related to their burden on the patient and the health system. It is this experience that grounds her belief that health research must focus on health outcomes based on issues that are clearly identified by patients and families.
Candace is the co-chair of the SCPOR Patient & Family Advisory Council.
Tyler is a patient, researcher and patient advocate. He has extensive lived experience which drives his passion for innovation and engagement in healthcare.
Brian’s interest in patient-oriented research is in the areas of Mental Health & Addictions, Alzheimer’s and dementia. He has fought a long battle with addiction which drives his passion is to help anyone who struggles with mental health and especially those who suffer with alcohol and drug addiction.
Bio coming soon…
Photo and bio coming soon…
Mark is a semi-retired engineer who worked most of his career in the petroleum refining industry. His experience with the health care system comes from sharing his late wife’s long battle with cancer and now he is interested in ways he can participate in improving patient care and outcomes, especially in cancer related issues.
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