Little research data exists about trans people in Saskatchewan. Principal Investigator Dr. Stephanie Madill and Dr. Megan Clark were asked by a community organization supporting people with lived experience to address this issue. They established a multi-disciplinary team of 28-30 members, among them researchers, data analysts, social workers, a physiotherapist and family practitioners, many of whom also have lived experience. People with lived experience identified the priority - wanting better access to safe care from healthcare providers who have interest in and knowledge about trans health issues, and the research objectives - determining health care access for people who are trans and gender diverse in Saskatchewan and determining the impact of health navigators through a one-year pilot. People with lived experience have been meaningfully included in every stage of the project and have been equal decision makers throughout. They determined a need for immediate action rather than future results, leading to the implementation of navigators, one in Regina and one in Saskatoon, both of whom bring lived and professional healthcare experience to their roles. The project is funded by the Saskatchewan Health Research Foundation and SCPOR and collaborations exist with the community, clinicians, academics and policy makers.
Among the project highlights, after learning that changing legal names and gender markers was a major barrier to care, the navigators became notaries public and held several clinics to assist clients thereby improving their ability to access healthcare, seek employment, attend school and participate socially. The most notable outcome from the project is understanding the importance and need for navigators. SCPOR is proud of the immediate impact the navigators have had connecting 259 clients – including 248 repeat users - with safe and appropriate health care and providing education and other services to 70 healthcare providers, 36 of whom contacted the navigators more than once. These relationships will help incorporate new knowledge into the health system, improving accessibility, and address some of the challenges faced by the navigators, including the lack of physicians with the interest or knowledge needed to provide primary healthcare for people who are trans and gender diverse and the long wait times to see these physicians. SCPOR is excited about the potential for sustainability; due to its success (93% of survey respondents were satisfied or very satisfied with the navigator services provided), at the pilot’s end, a community organization sought bridge funding to extend the navigator role beyond the project.
Preliminary meetings with the Ministry of Health to seek long-term funding for navigators situated within the healthcare system have occurred. While the full impact is still under analysis, the team hypothesizes that emergency and urgent care visits will decline once patients have access to trans-friendly primary care providers. Impacts will be further assessed through the narrative analysis of the navigators’ journals, including deidentified client stories and post-service interviews with clients and support people.