Patient & Public Resources
Patient engagement in patient-oriented research is essential for success. Once you’ve taken the first step of your Patient Partner journey - like deciding to learn more by visiting us here - there are a number of resources available to guide your path and provide you with a better understanding of what it means to be a Patient Partner and tools to maximize your potential for success!
Role of Patient Partners
There are a variety of ways Patient Partners contribute to patient-oriented research (POR), such as partnering on a research project, representing patients on a committee or contributing to the work being done at SCPOR.
In patient-oriented research, Patient Partners are engaged at every stage of the research, from identifying the priorities, and designing, conducting and analyzing surveys to translating the knowledge gained through research and implementing the findings so they can be used in our health systems. There is no one definition of a Patient Partner’s role - each brings their own unique experience and skill set and each project requires different things from different people.
Check out the 9 Ways Patient Partners can get Involved in Research and learn more about the opportunities available!
Patient Partners play an important role at SCPOR, as well. They serve on governance committees, representing the voice of people with lived experience and the contribute not only to the development of products and tools, but in also in training others how to use them. As they become experts in POR, from serving on projects or other relevant initiatives, they assist in adjudicating grant applications, presentations at research showcases and more. For a more fulsome look at some of the roles Patient Partners Play at SCPOR, view How Patient Partners are Engaged at SCPOR.
Patient Engagement and Research Link (PEARL)
PEARL offers solutions to patients, who wish to share the expertise they have gained through lived experience as members of research projects or participants in research. If you’re looking for opportunities to share your lived experience and improve our healthcare system, then click here to get started!
Patient Partner Honoraria
Patient Partners receive honoraria for their contributions as a show of appreciation. Being a Patient Partner is not a paid position, but rather a volunteer initiative. However, they contribute their time and energy to improve research and make our province a healthier place to live, work and play. SCPOR encourages Patient Partners be compensated and has created guidelines for payment and a system - through Better Impact (BI) - for paying Patient Partners.
Onboarding Guides
If you’re new to patient-oriented research, or simply joining a new team, these guides will help get your project started in the right direction!
SCPOR’s Onboarding Guide for Patient-Oriented Research (POR) Teams was co-developed with Patient Partners to address some of the important details to consider when forming a new POR team.
