SCPOR Patient-Oriented Research
Level of Engagement Tool
The SCPOR Patient-Oriented Research Level of Engagement Tool measures the degree to which a project meets the definition of patient-oriented research described by the CIHR Strategy for Patient-Oriented Research (SPOR). The tool utilizes five criteria which have been adopted from SPOR published documents. These criteria are: patients are partners, patient identified priorities, outcomes important to patients, team is multidisciplinary, and aims to integrate knowledge into practice. Each of these criteria is rated on a scale from 1 to 5.
The tool scores each criteria on a continuum from 1 to 5. A score of 1 for each criteria suggests limited patient-oriented research criteria have been met within the project. A score of 5 for each criteria suggests all aspects of the project meet ideal patient-oriented research criteria, for instance: patients are activity involved in all aspects of the research project, the team has representation from research, health system and the patient community, and knowledge translations activities have been planned and approved by all members of the team.
Each category should be assessed individually and then summed to provide a total score.
A score of 1 indicates the lowest score possible and a score of 5 indicates the highest score possible in each category. The highest possible total score for a project is 25.
Patient: The term patient is defined as either someone who has personal experience of a health issue, or their informal caregivers, including family and friends (SPOR Patient Engagement Framework). The term patient may be replaced with client, family, resident, person with lived experience, community or community based organization.
Inform: To provide patients balanced and objective information to assist them in understanding the problem and potential solutions.
Consult: To obtain patients’ feedback on the research project and decisions.
Involve: To work directly with patients throughout the process to ensure that their viewpoints are understood and considered.
Collaborate: To partner with patients in each aspect of the research project.
Empower: To place final decision making in the hands of the patients.
Note: Definitions for inform, consult, involve, collaborate and empower are adapted from the International Association for Public Participation (IAP2) Public Participation Spectrum.
Canadian Institutes of Health Research (2017). Strategy for Patient-Oriented Research. Retrieved from http://www.cihr-irsc.gc.ca/e/41204.html
Canadian Institutes of Health Research (2014). SPOR Patient Engagement Framework. Retrieved from http://www.cihr-irsc.gc.ca/e/48413.html
Canadian Institutes of Health Research (2015). SPOR Capacity Development Framework. Retrieved from http://www.cihr-irsc.gc.ca/e/49307.html
International Association for Public Participation (2015). IAP2 Spectrum for Public Participation. Retrieved from http://iap2canada.ca/page-1020549