Interactive PORLET Glossary

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Patients are Partners

 

1

Patients are named as team members and are informed about the research but do not have a role in any phase of the project.

2

Patients are named as team members who are consulted throughout the project.

3

Patients are named as team members who are involved throughout the project.

4

Patients are active partners who collaborate with team members throughout the research project.

5

Patients are equal partners who are empowered to make decisions throughout the research project.

 

Patient Identified Priorities

 

1

Patients do not identify the research priorities. Patients are informed about the research project.

2

Patients are consulted about the research priority.

3

Patients are involved in identifying the research priority.

4

Patients collaborate to identify the research priority with researchers, clinicians, stakeholders and the health system.

5

Patients identify the research priority to researchers, clinicians, stakeholders and the health system.

 

Outcomes Important to Patients

 

1

Patients are not involved in identifying the research outcomes. Patients are informed about the research outcomes.

2

Patients are consulted about the research outcomes.

3

Patients are involved in identifying the research outcomes.

4

Patients collaborate to identify the research outcomes with researchers, clinicians, stakeholders and the health system.

5

Patients identify the research outcomes to researchers, clinicians, stakeholders and the health system.

 

Team is Multi-Disciplinary

 

1

Research team does not include relevant disciplines or stakeholders.

2

Research team includes relevant disciplines and stakeholders; however roles are unclear.

3

Research team includes relevant disciplines and stakeholders who have clear roles.

4

Research team includes relevant disciplines and stakeholders who have clear roles, but are not integrated throughout the project.

5

Research team includes relevant disciplines and stakeholders whose roles are clearly outlined and are integrated throughout the project.

 

Aims to Integrate Knowledge into Practice

 

1

Patients and end-users do not have a role in the knowledge translation plan. They are informed about the plan.

2

Patients and end-users are consulted about the knowledge translation plan.

3

Patients and end-users are involved in the knowledge translation plan.

4

Patients and end-users collaborate on the knowledge translation plan.

5

Patients and end-users are creators and implementers of the knowledge translation plan.