Patients are Partners

1

Patients are informed about the research project. Patients do not have a direct role in any decision making.

2

Patients are consulted as team members who provide feedback about the project. Patients do not have a direct role in decision-making.

3

Patients are involved as team members. Patients consistently share ideas that are sometimes reflected in project decisions.

4

Patients collaborate as equal team members. Patients co-develop ideas that are incorporated into project decisions.

5

Patients are empowered as team members. Patients are considered primary decision-makers throughout the project.

Patients do not identify the research priorities. Patients are informed about the research project.

Patients are consulted about the research priority.

Patients are involved in identifying the research priority.

Patients collaborate to identify the research priority with researchers, clinicians, stakeholders and the health system.

Patients identify the research priority to researchers, clinicians, stakeholders and the health system.

Patients are not involved in identifying the research outcomes. Patients are informed about the research outcomes.

Patients are consulted about the research outcomes.

Patients are involved in identifying the research outcomes.

Patients collaborate to identify the research outcomes with researchers, clinicians, stakeholders and the health system.

Patients identify the research outcomes to researchers, clinicians, stakeholders and the health system.

Research team does not include relevant disciplines or stakeholders.

Research team includes relevant disciplines and stakeholders; however roles are unclear.

Research team includes relevant disciplines and stakeholders who have clear roles.

Research team includes relevant disciplines and stakeholders who have clear roles, but are not integrated throughout the project.

Research team includes relevant disciplines and stakeholders whose roles are clearly outlined and are integrated throughout the project.

Patients and end-users do not have a role in the knowledge translation plan. They are informed about the plan.

Patients and end-users are consulted about the knowledge translation plan.

Patients and end-users are involved in the knowledge translation plan.

Patients and end-users collaborate on the knowledge translation plan.

Patients and end-users are creators and implementers of the knowledge translation plan.